WEB RESOURCES
Following are available web resources. If you would like to recommend a resource please email us at info@spinsc.org.
SPIN is a neutral resource for information and does not endorse, recommend, or make representations with respect to the research, services, medications, treatments, or products of specific individuals.
ADD/ADHD
Center for Disease Control and Prevention
Fact sheets about ADHD.
CHADD
Improving the lives of those affected by ADHD.
Apert Syndrome
APERT.ORG
This Internet safe haven is dedicated to the strength and determination of all of the people with craniofacial differences and their families.
Aphasia
NATIONAL APHASIA ASSOCIATION
The National Aphasia Association is a nonprofit organization that promotes public education, research, rehabilitation and support services to assist people with aphasia and their families.
Apraxia
APRAXIA-KIDS
Apraxia-Kids is your online source for reliable and comprehensive information about Childhood Apraxia of Speech* for families, professionals and all those who care about a child with apraxia. *Childhood Apraxia of Speech is sometimes called Developmental Apraxia of Speech, Developmental Verbal Dyspraxia, Oral-motor Speech Disorder and other terms.
Ataxia
A-T CHILDREN'S PROJECT
The A-T Children’s Project was formed to raise funds to accelerate first-rate, international scientific research aimed at finding a cure and improving the lives of all children with ataxia-telangiectasia. The Web Site is full of useful information on ataxia-telangiectasia
NATIONAL ATAXIA FOUNDATION
The National Ataxia Foundation is dedicated to improving the lives of persons affected by ataxia through service, education, and research
Auditory Processing Disorder
AUDITORY PROCESSING DISORDER
The mission of the National Coalition on Auditory Processing Disorders, Inc. is to assist families and individuals affected by auditory processing disorders through education, support, and public awareness as well as promoting auditory access of information for those affected by auditory processing disorders.
Autism Spectrum Disorder
CAPTAIN California Autism Professional Training and Information Network
AUTISM SOCIETY OF AMERICA
ASA is dedicated to increasing public awareness about autism and the day-to-day issues faced by individuals with autism, their families and the professionals with whom they interact. The Society and its chapters share a common mission of providing information and education, supporting research and advocating for programs and services for the autism population.
AUTISM SPEAKS
Autism Speaks is dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder..
Communicating with an Autistic Child: A Parent's Guide
AUTISM RESOURCES Welcome to www.autism-resources.com, offering information and links regarding the developmental disabilities autism and Asperger's Syndrome.
CENTER FOR THE STUDY OF AUTISM The Center for the Study of Autism (CSA) is located in the Salem/Portland, Oregon area. The Center provides information about autism to parents and professionals, and conducts research on the efficacy of various therapeutic interventions. Much of our research is in collaboration with the Autism Research Institute in San Diego, California.
AUTISM NATIONAL COMMITTEE This site is an autism advocacy organization founded in 1990 to protect and advance the human rights and civil rights of all persons with autism, Pervasive Developmental Disorder, and related differences of communication and behavior.
INFORMATION ON AUTISM FROM KIDS HEALTH
This site explains Autism in a way children can understand.
Asperger's Syndrome
Parenting Aspergers Community
Discover the ULTIMATE collection of Parenting help and Aspergers advice that you are ever likely to need. Whatever parenting tips, tricks and techniques that you want for helping your child with Aspergers it's all here for you to access now.
OASIS @ MAAP
The Online Asperger Syndrome Information and Support (OASIS) center has joined with MAAP Services for Autism and Asperger Syndrome to create a single resource for families, individuals, and medical professionals who deal with the challenges of Asperger Syndrome, Autism, and Pervasive Developmental Disorder/ Not Otherwise Specified (PDD/NOS).
Bipolar Disorder
Healthline
Healthline provides a very comprehensive overview of bipolar disorder as a critical starting point for individuals and/or their loved ones.
Overview and other features of bipolar disorders.
Cerebral Palsy
American Academy for Cerebral Palsy and Developmental Medicine (AACPDM)
The American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) is an Academy of over 1,100 health professionals dedicated to providing multidisciplinary scientific education and promoting excellence in research and services for the benefit of people with and at risk for cerebral palsy and other childhood-onset disabilities.
Center for Disease Control and Prevention
Links to Other Resources on Cerebral Palsy
CP Daily Living
CP Daily Living is designed to give families and caregivers dealing with CP a central place for practical information and resources within the context of an emotionally-supportive community.
INFORMATION ON CEREBRAL PALSY FROM KIDS HEALTH
This site explains Cerebral Palsy in a way children can understand.
Cystic Fibrosis
NIH (National Heart, Lung and Blood Institute)
The National Heart, Lung, and Blood Institute (NHLBI) provides global leadership for a research, training, and education program to promote the prevention and treatment of heart, lung, and blood disorders and enhance the health of all individuals so that they can live longer and more fulfilling lives.
Down Syndrome
INFORMATION ON DOWN SYNDROME FROM KIDS HEALTH
This site explains Down Syndrome in a way children can understand.
The National Down Syndrome Society (NDSS)
NDSS is committed to being the national leader in enhancing the quality of life, and realizing the potential of all people with Down syndrome.
Managing Learning Disabilities
For teen and young adults
Dyscalulia
DYSCALCULIA.ORG
This web site list resources that are useful for parents and educators working with children with Dyscalulia.
Dyslexia
DYSLEXIA HELP AT THE UNIVERSITY OF MICHIGAN
Helps individuals with dyslexia, as well as parents, employers, and professionals who have the privilege to work with dyslexics gain new understandings about dyslexia and language disability, including current research findings and how to design intervention contexts based on best practices.
DYSLEXIA - THE GIFT
Join us as we explore the positive talents that give rise to dyslexia and share our knowledge about the best ways for dyslexic people to learn.
INTERNATIONAL DYSLEXIA ASSOCIATION
The International Dyslexia Association (IDA) is a non-profit organization dedicated to helping individuals with dyslexia, their families and the communities that support them. Their goal is to provide the most comprehensive forum for parents, educators, and researchers to share their experiences, methods, and knowledge.
INFORMATION ON DYSLEXIA FROM KIDS HEALTH
This site explains Dyslexia in a way children can understand.
YALE CENTER FOR DYSLEXIA & CREATIVITY
The Yale Center for Dyslexia & Creativity serves as a nexus for research on dyslexia, and is as well a leading source of advocacy and information to better the lives of people with dyslexia.
Dyspraxia
DYSPRAXIA FOUNDATION
A UK charity which exists to help people to understand and cope with dyspraxia. We are a resource for parents, for teenagers and adults who have the condition, and for professionals who help all of them.
Epilepsy
EPILEPSY FOUNDATION
"The Epilepsy Foundation will ensure that people with seizures are able to participate in all life experiences; and will prevent, control and cure epilepsy through research, education, advocacy and services".
INFORMATION ON EPILEPSY FROM KIDS HEALTH
This site explains Epilepsy in a way children can understand.
Erb's Palsy
Erb's Palsy
The condition known as Erb's Palsy is caused by an injury to the brachial plexus—the nerves surrounding the shoulder. Erb's Palsy is not cerebral palsy, because it is not caused by brain injury or brain abnormalities. Erb's Palsy is also called brachial palsy, Erb-Duchenned paralysis, or Klumpke paralysis. BrainandSpinalCord.org goal is for their website to be the most reliable, timely and complete resource on the internet for brain injury and spinal cord injury survivors.
Fetal Alcohol Syndrome
At Mayo Clinic, a world-class team of doctors and specialists will see you in one place, at one time. They'll listen to your story, learn your goals, and work together to accurately diagnose and treat your condition so you can get back to your life as quickly as possible.
CENTER FOR DISEASE CONTROL FETAL ALCOHOL SYNDROME PAGE
This Web Page is dedicated to educate individuals on Fetal Alcohol Syndrome.
Fragile X Syndrome
NATIONAL FRAGILE X FOUNDATION
There is information on this web site that you may view, use and download to share with physicians, therapists and teachers to increase awareness of Fragile X Syndrome.
FRAXA RESEARCH FOUNDATION
The web site is dedicated to support research aimed at treatment for Fragile X syndrome.
Hearing Impaired
ALEXANDER GRAHAM BELL ASSOCIATION FOR THE DEAF AND HARD OF HEARING
Information and support center for pediatric hearing loss and the auditory approach.
INFORMATION ON HEARING IMPAIRMENTS FROM KIDS HEALTH
This site explains Hearing Impairments in a way children can understand.
Lennox-Gastaut Syndrome
LGS FOUNDATION
The LGS Foundation's mission is to improve the lives of individuals affected by Lennox-Gastaut Syndrome through research, programs, and education.
NINDS LENNOX-GASTAUT SYNDROME INFORMATION PAGE
The Lennox-Gastaut (LG) syndrome is one of the epileptogenic encephalopathies of childhood an it presents as intractable or hard to control seizures.
Learning Disabilities
LDONLINE
Web site on Learning Disabilities for parents, teachers and other professionals.
LEARNING DISABILITIES ASSOCIATION OF AMERICA
The Learning Disabilities Association of America (LDA) is a non-profit grassroots organization whose members are individuals with learning disabilities, their families, and the professionals who work with them. LDA strives to advance the education and general welfare of children and adults with learning disabilities.
NATIONAL CENTER FOR LEARNING DISABILITIES
The mission of the National Center for Learning Disabilities (NCLD) is to increase opportunities for all individuals with learning disabilities to achieve their potential. NCLD accomplishes its mission by increasing public awareness and understanding of learning disabilities, conducting educational programs and services that promote research-based knowledge, and providing national leadership in shaping public policy. We provide solutions that help people with LD participate fully in society.
INFORMATION ON LEARNING DISABILITIES FROM CENTER FOR PARENT INFORMATION & RESOURCES
Mitochondrial Disease
MITOCHONDRIAL DISEASE
To promote research for cures and treatments of mitochondrial disorders and to provide support to affected individuals and families.
MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, clinical research initiatives and by granting wishes for children affected by mitochondrial disease
Nonverbal Learning Disorder
The NVLD Project is dedicated to raising awareness, building support and creating helpful solutions for children, adolescents, and adults with Non-Verbal Learning Disability. This goal is accomplished through a variety of programs.
UNITED BRAIN ASSOCIATION
The United Brain Association, Inc., formerly The American Brain Society, Inc., is a 501(c)3 nonprofit organization working to find cures for over 600 Brain and Mental Health-related issues and disorders.
Learning disorders can make it difficult to perform at school or work, but the right diagnosis and support can make a big difference.
Prader-willi Syndrome
PRADER-WILLI SYNDROME ASSOCIATION
Prader-Willi Syndrome Association (USA) is dedicated to serving individuals affected by Prader-Willi Syndrome (PWS), their families, and interested professionals by providing information, education, and support services.
Sensory Processing Disorder
Sensory Processing Disorder Foundation
The SPD Foundation is the world leader in research, education, and awareness for Sensory Processing Disorder, a neurological condition that disrupts the daily lives of more than 4 million Americans. The SPD Foundation provides hope and help to individuals and families living with SPD.
Smith-Magenis Syndrome
GENETICS HOME REFERENCE: SMITH-MAGENIS SYNDROME
This site explains Smith-Magenis Syndrome as well as other information and resources.
Spina Bifida
SPINA BIFIDA ASSOCIATION OF AMERICA
The Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of all affected. The Association was founded in 1973 to address the specific needs of the spina bifida community and serves as the national representative of almost 60 chapters.
INFORMATION ON SPINA BIFIDA FROM KIDS HEALTH
This site explains Spina Bifida in a way children can understand.
Tourette Syndrome
INFORMATION ON TOURETTE SYNDROME FROM KIDS HEALTH
This site explains Tourette Syndrome in a way children can understand.
Visually Impaired
CAPVI (the California Association for Parents of Children with Visual Impairments)
Family Connect (for parents of children with visual impairments)
On FamilyConnect you'll find videos, personal stories, events, news, and an online community that can offer tips and support from other parents of children who are blind or visually impaired.
How Colleges Help Visually Impaired Students Succeed
A resource guide that explores how visual impairments impact the educational experience, what colleges are doing for the visually impaired, and includes numerous resources, as well insight and tips from experts and a list of scholarships and grants..
Williams Syndrome
The Williams Syndrome Association
The Williams Syndrome Association is dedicated to enriching the lives of individuals with characteristics of Williams syndrome.
Information on Willimas Syndrome from the National Institute of Neurological Disorders and Stroke (NINDS)
NINDS is dedicated to reduce the burden of neurological disease .
Special Education Links
Individualized Education Programs (IEPs)
Wrightslaw site contains articles, law and regulations, and tips about how to get quality services in your child's IEP. You'll also learn how to use tactics and strategies to negotiate with the school. This page includes IEP cases, recommended books, and free publications about IEPs.
18 TIPS FOR GETTING QUALITY EDUCATIONAL SERVICES FOR YOUR CHILD
This information is provided by Disability Rights California a nonprofit agency that provides legal and other advocacy assistance to people with disabilities, including physical, developmental and psychiatric disabilities. Services available from DRC include: information and referral to other sources of assistance; peer and self advocacy training; representation in administrative and judicial proceedings; investigation of abuse and neglect; and legislative advocacy.
RIGHTS AND RESPONSIBILITIES MANUAL
This manual was produced by Community Alliance for Special Education (CASE) and Protection and Advocacy, Inc (PAI). The manual is a valuable resource for parents with special needs children. It includes such things as Evaluation and Assessment, IEP Process, Due Process Hearings/Compliance Complaints and Least Restrictive Environment for educational placement. It is available in several spoken languages.
CALTASH - THE ASSOCIATION FOR PERSONS WITH SEVERE HANDICAPS
This organization provides support on advocacy for Californians with severe disabilities in education, employment, living, recreation and other community access issues through legislation, information and support of litigation. It conducts summer symposiums, newsletters, Legislative information affecting persons with disabilities.
COPAA
The Council of Parent Attorneys and Advocates (COPAA) is an independent, nonprofit, §501(c)(3) tax-exempt organization of attorneys, advocates and parents, whose primary mission is to secure educational services for children with disabilities. COPAA is premised on the belief that the key to effective educational programs for children with disabilities is collaboration as equals by parents and educators.
IDEA Statute and Regulations
The Individuals with Disabilities Education Act Laws and Regulations
CALIFORNIA DEPARTMENT OF EDUCATION - SPECIAL EDUCATION DIVISION
CALIFORNIA DEPARTMENT OF EDUCATION - Procedural Safeguards Referral Service
Education & Employment
PARENTS ADVOCACY COALITION FOR EDUCATIONAL RIGHTS
PACER provides information on disabilities and disability-related issues, such as post-seconadry education.
NATIONAL COLLABORATIVE ON WORKFORCE AND DISABILITY
NCWD/Youth is your source for information about employment and youth with disabilities.
COPING.US TOOLS FOR COPING WITH LIFE'S STRESSORS
EMPLOYMENT DEVELOPMENT DEPARTMENT
They offer a variety of programs and services that were especially designed for youth or may be of interest to youth.
College Resources for Students with Disabilities
With more adaptive technologies and progressive legislature, prospective college students with disabilities have countless resources available to make the transition to higher education less stressful. This guide Helps these students and their families better understand the resources available to them. .
THE NATIONAL CENTER ON SECONDARY EDUCATION AND TRANSITION
Was established to create opportunities for youth with disabilities to achieve successful futures.
Nursing Career Guide for People with Disabilities
Related Organizations
Developmental Learning Solutions
Developmental Learning Solutions (DLS) offers comprehensive services and programs to both children and adults with learning differences and learning disabilities on their path to academic and professional success.
Education Specialists Network
Education Specialists Network is a comprehensive network of specialists who support the educational, emotional and physical needs of students in the greater San Francisco Bay Area. This is a free referral service for parents, educators and allied professionals to empower student success.
NATIONAL INFORMATION CENTER FOR CHILDREN AND YOUTH WITH DISABILITIES
NICHCY is the national information center that provides information on disabilities and disability-related issues.
Lindamood-Bell Learning Processes-Monterey Center
Lindamood-Bell Learning Processes is an organization dedicated to helping children and adults learn to their potential. Lindamood-Bell's research-based instruction teaches reading, language comprehension, and math, and is especially successful with children previously diagnosed with dyslexia, hyperlexia, and autism disorders.