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Web Resources


Following are available web resources. Choose an index item to view a specific topic or scroll down to view resource details. If you would like to recommend a resource please email us at info@spinsc.org.

SPIN is a neutral resource for information and does not endorse, recommend, or make representations with respect to the research, services, medications, treatments, or products of specific individuals.

Disabilities Index


bullet ADD/ADHD
bullet Apert Syndrome
bullet Aphasia
bullet Apraxia
bullet Ataxia
bullet Auditory Processing Disorder
bullet Autism Spectrum Disorder
bullet Asperger's Syndrome
bullet Bipolar Disorder
bullet Cerebral Palsy
bullet Cystic Fibrosis
bullet Down Syndrome
bullet Dyscalulia
bullet Dyslexia
bullet Dyspraxia
bullet Epilepsy
bullet Erb's Palsy
bullet Fetal Alcohol Syndrome
bullet Fragile X Syndrome
bullet Hearing Impaired
bullet Lennox-Gastaut Syndrome
bullet Learning Disabilities
bullet Mitochondrial Disease
bullet Nonverbal Learning Disorder
bullet Prader-Willi Syndrome
bullet Sensory Processing Disorder
bullet Smith-Magenis Syndrome
bullet Spina Bifida
bullet Tourette Syndrome
bullet Williams Syndrome

Special Education Index


bullet Special Education Links

Post-Secondary Resources


bullet Education & Employment

Other related organizations


bullet Related organizations


ADD/ADHD


ADD CENTRAL
Resources & Links for people whose attention is different.

INFORMATION ON ADHD FROM KIDS HEALTH
This site explains ADHD in a way children can understand.


Apert Syndrome


APERT.ORG
This Internet safe haven is dedicated to the strength and determination of all of the people with craniofacial differences and their families.


Aphasia


NATIONAL APHASIA ASSOCIATION
The National Aphasia Association is a nonprofit organization that promotes public education, research, rehabilitation and support services to assist people with aphasia and their families.


Apraxia


APRAXIA-KIDS
Apraxia-Kids is your online source for reliable and comprehensive information about Childhood Apraxia of Speech* for families, professionals and all those who care about a child with apraxia. *Childhood Apraxia of Speech is sometimes called Developmental Apraxia of Speech, Developmental Verbal Dyspraxia, Oral-motor Speech Disorder and other terms.


Ataxia


A-T CHILDREN'S PROJECT
The A-T Children’s Project was formed to raise funds to accelerate first-rate, international scientific research aimed at finding a cure and improving the lives of all children with ataxia-telangiectasia. Te Web Site is full of useful information on ataxia-telangiectasia

NATIONAL ATAXIA FOUNDATION
The National Ataxia Foundation is dedicated to improving the lives of persons affected by ataxia through service, education, and research


Auditory Processing Disorder


AUDITORY PROCESSING DISORDER
The mission of the National Coalition on Auditory Processing Disorders, Inc. is to assist families and individuals affected by auditory processing disorders through education, support, and public awareness as well as promoting auditory access of information for those affected by auditory processing disorders.


Autism Spectrum Disorder


AUTISM SOCIETY OF AMERICA
ASA is dedicated to increasing public awareness about autism and the day-to-day issues faced by individuals with autism, their families and the professionals with whom they interact. The Society and its chapters share a common mission of providing information and education, supporting research and advocating for programs and services for the autism population.

AUTISM SPEAKS
Autism Speaks is dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder..

CURE AUTISM NOW
Cure Autism Now is an organization of parents, physicians, and researchers, dedicated to promoting and funding research with direct clinical implications for treatment and a cure for autism. The largest private funder of autism research, since its founding in 1995 Cure Autism Now has directed over $5 million to support research projects and a crucial scientific resource - the Autism Genetic Resource Exchange (AGRE). AGRE is the world's first collaborative gene bank that contains information on families with more than one child with autism

AUTISM RESOURCES Welcome to www.autism-resources.com, offering information and links regarding the developmental disabilities autism and Asperger's Syndrome.

CENTER FOR THE STUDY OF AUTISM The Center for the Study of Autism (CSA) is located in the Salem/Portland, Oregon area. The Center provides information about autism to parents and professionals, and conducts research on the efficacy of various therapeutic interventions. Much of our research is in collaboration with the Autism Research Institute in San Diego, California.

AUTISM NATIONAL COMMITTEE This site is an autism advocacy organization founded in 1990 to protect and advance the human rights and civil rights of all persons with autism, Pervasive Developmental Disorder, and related differences of communication and behavior.

INFORMATION ON AUTISM FROM KIDS HEALTH
This site explains Autism in a way children can understand.

WORLD MED ASSIST: Autism Spectrum Disorder – A Medical Guide


Asperger's Syndrome


ASPERGER SYNDROME COALITION
The Asperger Syndrome Coalition of the U.S. is a national nonprofit organization committed to providing the most up-to-date and comprehensive information on Asperger Syndrome and related conditions.


Bipolar Disorder


CHILD AND ADOLESCENT BIPOLAR FOUNDATION
The Child and Adolescent Bipolar Foundation educates families, professionals, and the public about early-onset bipolar disorders; supports families to maximize the well-being of the child while minimizing the adverse impact of bipolar disorders on the family; and advocates for increased services to families and research on the nature, causes, and treatment of bipolar disorders in the young.

Healthline
Healthline provides a very comprehensive overview of bipolar disorder as a critical starting point for individuals and/or their loved ones.


Cerebral Palsy


SUSIE'S CEREBRAL PALSY HOME PAGE
"My name is Susie Rodde. I'm 46 and live in Torrance, California with a hearing dog named Ivy, and an attack cat named Kameco. This page is about me and my story. At the bottom of the page you'll find links to several additional pages. Some are used as resources by those with CP or other disabilities, parents of children with CP, students, and professionals such as Doctors, therapists, and teachers. Others simply serve as a way to connect with one another".

INFORMATION ON CEREBRAL PALSY FROM KIDS HEALTH
This site explains Cerebral Palsy in a way children can understand.



Cystic Fibrosis


CYSTIC FIBROSIS FOUNDATION
The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.


Down Syndrome


INFORMATION ON DOWN SYNDROME FROM KIDS HEALTH
This site explains Down Syndrome in a way children can understand.

The National Down Syndrome Society (NDSS)
NDSS is committed to being the national leader in enhancing the quality of life, and realizing the potential of all people with Down syndrome.

Dyscalulia


DYSCALCULIA.ORG
This web site list resources that are useful for parents and educators working with children with Dyscalulia.


Dyslexia


DYSLEXIA - THE GIFT
Join us as we explore the positive talents that give rise to dyslexia and share our knowledge about the best ways for dyslexic people to learn.

INTERNATIONAL DYSLEXIA ASSOCIATION
The International Dyslexia Association (IDA) is a non-profit organization dedicated to helping individuals with dyslexia, their families and the communities that support them. Their goal is to provide the most comprehensive forum for parents, educators, and researchers to share their experiences, methods, and knowledge.

INFORMATION ON DYSLEXIA FROM KIDS HEALTH
This site explains Dyslexia in a way children can understand.

DYSLEXIA PARENTS RESOURCE
Supporting and Educating your child with dyslexia.

Dyspraxia


DYSPRAXIA FOUNDATION
A UK charity which exists to help people to understand and cope with dyspraxia. We are a resource for parents, for teenagers and adults who have the condition, and for professionals who help all of them.


Epilepsy


EPILEPSY FOUNDATION
"The Epilepsy Foundation will ensure that people with seizures are able to participate in all life experiences; and will prevent, control and cure epilepsy through research, education, advocacy and services".

THE EPILEPSY NETWORK
The Epilepsy Network's two-fold mission is to provide compassionate support, education, information and referrals for people whose lives are touched by epilepsy, and to increase community awareness of seizure recognition and first aid procedures by means of training and community outreach to educators, businesses and medical professionals.

INFORMATION ON EPILEPSY FROM KIDS HEALTH
This site explains Epilepsy in a way children can understand.


Erb's Palsy


Erb's Palsy
The condition known as Erb's Palsy is caused by an injury to the brachial plexus—the nerves surrounding the shoulder. Erb's Palsy is not cerebral palsy, because it is not caused by brain injury or brain abnormalities. Erb's Palsy is also called brachial palsy, Erb-Duchenned paralysis, or Klumpke paralysis. BrainandSpinalCord.org goal is for their website to be the most reliable, timely and complete resource on the internet for brain injury and spinal cord injury survivors.


Fetal Alcohol Syndrome


NATIONAL ORGANIZATION ON FETAL ALCOHOL SYNDROME
NOFAS is committed to raising public awareness of Fetal Alcohol Syndrome (FAS)—the leading known cause of mental retardation—and to developing and implementing innovative ideas in prevention, intervention, education and advocacy in communities throughout the nation.

CENTER FOR DISEASE CONTROL FETAL ALCOHOL SYNDROME PAGE
This Web Page is dedicated to educate individuals on Fetal Alcohol Syndrome.


Fragile X Syndrome


NATIONAL FRAGILE X FOUNDATION
There is information on this web site that you may view, use and download to share with physicians, therapists and teachers to increase awareness of Fragile X Syndrome.

FRAXA RESEARCH FOUNDATION
The web site is dedicated to support research aimed at treatment for Fragile X syndrome.


Hearing Impaired


ALEXANDER GRAHAM BELL ASSOCIATION FOR THE DEAF AND HARD OF HEARING
Information and support center for pediatric hearing loss and the auditory approach.

INFORMATION ON HEARING IMPAIRMENTS FROM KIDS HEALTH
This site explains Hearing Impairments in a way children can understand.


Lennox-Gastaut Syndrome


LENNOX-GASTAUT SYNDROME
The Lennox-Gastaut (LG) syndrome is one of the epileptogenic encephalopathies of childhood an it presents as intractable or hard to control seizures.


Learning Disabilities


DIVISION FOR LEARNING DISABILITIES
The Division for Learning Disabilities (DLD) of the Council for Exceptional Children is the largest international professional organization focused on learning disabilities. The purpose of their web site TeachingLD is to provide trustworthy and up-to-date resources about teaching students with learning disabilities.

LDONLINE
Web site on Learning Disabilities for parents, teachers and other professionals.

LEARNING DISABILITIES ASSOCIATION OF AMERICA
The Learning Disabilities Association of America (LDA) is a non-profit grassroots organization whose members are individuals with learning disabilities, their families, and the professionals who work with them. LDA strives to advance the education and general welfare of children and adults with learning disabilities.

NATIONAL CENTER FOR LEARNING DISABILITIES
The mission of the National Center for Learning Disabilities (NCLD) is to increase opportunities for all individuals with learning disabilities to achieve their potential. NCLD accomplishes its mission by increasing public awareness and understanding of learning disabilities, conducting educational programs and services that promote research-based knowledge, and providing national leadership in shaping public policy. We provide solutions that help people with LD participate fully in society.

INFORMATION ON LEARNING DISABILITIES FROM KIDS HEALTH
This site explains Learning Disabilities in a way children can understand.


Mitochondrial Disease


MITOCHONDRIAL DISEASE
To promote research for cures and treatments of mitochondrial disorders and to provide support to affected individuals and families.


Nonverbal Learning Disorder


NLDline
Educating the care givers and associates of individuals with NLD is the prime goal of this web site.

NONVERBAL LEARNING DISORDERS ASSOCIATION
The Nonverbal Learning Disorders Association (NLDA) is an international non-profit corporation committed to facilitating education, research and advocacy for children and adults who manifest disabilities associated with the syndrome of nonverbal learning disorders.


Prader-willi Syndrome


PRADER-WILLI SYNDROME ASSOCIATION
Prader-Willi Syndrome Association (USA) is dedicated to serving individuals affected by Prader-Willi Syndrome (PWS), their families, and interested professionals by providing information, education, and support services.


Sensory Processing Disorder


www.sensorize.com
This website is full of information, parent resources, and local Santa Cruz resources for parents and educators to use.




Smith-Magenis Syndrome


PARENTS AND RESEARCHERS INTERESTED IN SMITH-MAGENIS SYNDROME (PRISMS)
PRISMS is dedicated to providing information and support to families of persons with Smith-Magenis Syndrome (SMS) and fostering partnerships with professionals to increase awareness and understanding of SMS.


Spina Bifida


SPINA BIFIDA ASSOCIATION OF AMERICA
The Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of all affected. The Association was founded in 1973 to address the specific needs of the spina bifida community and serves as the national representative of almost 60 chapters.

INFORMATION ON SPINA BIFIDA FROM KIDS HEALTH
This site explains Spina Bifida in a way children can understand.

INFORMATION ON SPINA BIFIDA FROM Healthopedia.com YOUR HEALTH ENCYCLOPEDIA

Tourette Syndrome


INFORMATION ON TOURETTE SYNDROME FROM KIDS HEALTH
This site explains Tourette Syndrome in a way children can understand.


Williams Syndrome


The Williams Syndrome Association
The Williams Syndrome Association is dedicated to enriching the lives of individuals with characteristics of Williams syndrome.

Information on Willimas Syndrome from the National Institute of Neurological Disorders and Stroke (NINDS)
NINDS is dedicated to reduce the burden of neurological disease .


Special Education Links


I E P RESOURCE SITE
This site contains contemporary products for students across the disability continuum, K-12. Features teacher created materials for staff development. Includes educational curricula, software, videos, Assistive technology, and hands-on training materials.

18 TIPS FOR GETTING QUALITY EDUCATIONAL SERVICES FOR YOUR CHILD
This information is provided by Protection and Advocacy, Inc. (PAI) a nonprofit agency that provides legal and other advocacy assistance to people with disabilities, including physical, developmental and psychiatric disabilities. Services available from PAI include: information and referral to other sources of assistance; peer and self advocacy training; representation in administrative and judicial proceedings; investigation of abuse and neglect; and legislative advocacy.

RIGHTS AND RESPONSIBILITIES MANUAL
This manual was produced by Community Alliance for Special Education (CASE) and Protection and Advocacy, Inc (PAI). The manual is a valuable resource for parents with special needs children. It includes such things as Evaluation and Assessment, IEP Process, Due Process Hearings/Compliance Complaints and Least Restrictive Environment for educational placement. It is available in several spoken languages.

CALTASH - THE ASSOCIATION FOR PERSONS WITH SEVERE HANDICAPS
This organization provides support on advocacy for Californians with severe disabilities in education, employment, living, recreation and other community access issues through legislation, information and support of litigation. It conducts summer symposiums, newsletters, Legislative information affecting persons with disabilities.

COPAA
The Council of Parent Attorneys and Advocates (COPAA) is an independent, nonprofit, §501(c)(3) tax-exempt organization of attorneys, advocates and parents, whose primary mission is to secure educational services for children with disabilities. COPAA is premised on the belief that the key to effective educational programs for children with disabilities is collaboration as equals by parents and educators.

IDEA PRACTICE
The Individuals with Disabilities Education Act Laws and Regulations

CALIFORNIA DEPARTMENT OF EDUCATION - SPECIAL EDUCATION DIVISION

CALIFORNIA DEPARTMENT OF EDUCATION - Procedural Safeguards Referral Service

GUIDE TO LEGISLATIVE AND PUBLIC POLICY WEB SITES
A listing of issues of current importance affecting children with special needs/disabilities.

Education & Employment


PARENTS ADVOCACY COALITION FOR EDUCATIONAL RIGHTS
PACER provides information on disabilities and disability-related issues, such as post-seconadry education.

NATIONAL COLLABORATIVE ON WORKFORCE AND DISABILITY
NCWD/Youth is your source for information about employment and youth with disabilities.

COPING.ORG TOOLS FOR COPING WITH LIFE'S STRESSORS
An Overview of Vocational Education for Students with Disabilities

EMPLOYMENT DEVELOPMENT DEPARTMENT
They offer a variety of programs and services that were especially designed for youth or may be of interest to youth.

THE NATIONAL CENTER ON SECONDARY EDUCATION AND TRANSITION
Was established to create opportunities for youth with disabilities to achieve successful futures.



Related Organizations


A Special Nanny
Special Nanny provides qualified, dedicated, professional nannies and one-to-one aides for families of children with special needs living in the greater Bay Area.

Developmental Learning Solutions
Developmental Learning Solutions (DLS) offers comprehensive services and programs to both children and adults with learning differences and learning disabilities on their path to academic and professional success.

Education Specialists Network
Education Specialists Network is a comprehensive network of specialists who support the educational, emotional and physical needs of students in the greater San Francisco Bay Area. This is a free referral service for parents, educators and allied professionals to empower student success.

Helping Hands Therapeutic Riding Center
Helping Hands Therapeutic Riding Center is dedicated to helping children and adults with disabilities utilizing equine assisted activities to improve their everyday quality of life.

NATIONAL INFORMATION CENTER FOR CHILDREN AND YOUTH WITH DISABILITIES
NICHCY is the national information center that provides information on disabilities and disability-related issues.

FAMILY CENTER ON TECHNOLOGY AND DISABILITY
Monthly newsletter about technology; also resource library, on-line discussion group, and reviews.

Lindamood-Bell Learning Processes-Monterey Center
Lindamood-Bell Learning Processes is an organization dedicated to helping children and adults learn to their potential. Lindamood-Bell's research-based instruction teaches reading, language comprehension, and math, and is especially successful with children previously diagnosed with dyslexia, hyperlexia, and autism disorders.

Kutaways
Kutaways, is pursuing its goal to make dressing a little easier for people in wheelchairs with a unique and versatile coat. Kutaways coats offer comfort, warmth and ease of use, making daliy dressing easier and providing an added measure of self-esteem to the wearer.
Email Jennifer Gallienne at: jennifer@kutaways.com

Ohana Coaching
family-driven consulting services that provide practical tools for effective parenting, as well as to enhance open communication among all family members.
Contact Rachel Griffin
Email: rgsquared@gmail.com
Phone: (928) 308-7015

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Copyright © 2003 SPIN
This website is partially funded by The California Association of Family Empowerment Centers on Disabilities Grant
Last updated February 2009