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Web ResourcesFollowing are available web resources. Choose an index item to view a specific topic or scroll down to view resource details. If you would like to recommend a resource please email us at info@spinsc.org. SPIN is a neutral resource for information and does not endorse, recommend, or make representations with respect to the research, services, medications, treatments, or products of specific individuals. Disabilities IndexSpecial Education Index
Post-Secondary Resources
Other related organizations
ADD/ADHDADD CENTRAL Resources & Links for people whose attention is different. ADD INFORMATION NETWORK The Attention Deficit Information Network, Inc. is a non profit volunteer organization. We offer support and information to families of children with ADD, adults with ADD and professionals through a network of AD-IN chapters. INFORMATION ON ADHD FROM KIDS HEALTH This site explains ADHD in a way children can understand. Apert SyndromeAPERT.ORG This Internet safe haven is dedicated to the strength and determination of all of the people with craniofacial differences and their families. AphasiaNATIONAL APHASIA ASSOCIATION The National Aphasia Association is a nonprofit organization that promotes public education, research, rehabilitation and support services to assist people with aphasia and their families. ApraxiaAPRAXIA-KIDS Apraxia-Kids is your online source for reliable and comprehensive information about Childhood Apraxia of Speech* for families, professionals and all those who care about a child with apraxia. *Childhood Apraxia of Speech is sometimes called Developmental Apraxia of Speech, Developmental Verbal Dyspraxia, Oral-motor Speech Disorder and other terms. AtaxiaA-T CHILDREN'S PROJECT The A-T Children’s Project was formed to raise funds to accelerate first-rate, international scientific research aimed at finding a cure and improving the lives of all children with ataxia-telangiectasia. Te Web Site is full of useful information on ataxia-telangiectasia NATIONAL ATAXIA FOUNDATION The National Ataxia Foundation is dedicated to improving the lives of persons affected by ataxia through service, education, and research Auditory Processing DisorderAUDITORY PROCESSING DISORDER The mission of the National Coalition on Auditory Processing Disorders, Inc. is to assist families and individuals affected by auditory processing disorders through education, support, and public awareness as well as promoting auditory access of information for those affected by auditory processing disorders. Autism DisorderAUTISM SOCIETY OF AMERICA ASA is dedicated to increasing public awareness about autism and the day-to-day issues faced by individuals with autism, their families and the professionals with whom they interact. The Society and its chapters share a common mission of providing information and education, supporting research and advocating for programs and services for the autism population. CURE AUTISM NOW Cure Autism Now is an organization of parents, physicians, and researchers, dedicated to promoting and funding research with direct clinical implications for treatment and a cure for autism. The largest private funder of autism research, since its founding in 1995 Cure Autism Now has directed over $5 million to support research projects and a crucial scientific resource - the Autism Genetic Resource Exchange (AGRE). AGRE is the world's first collaborative gene bank that contains information on families with more than one child with autism AUTISM RESOURCES Welcome to www.autism-resources.com, offering information and links regarding the developmental disabilities autism and Asperger's Syndrome. CENTER FOR THE STUDY OF AUTISM The Center for the Study of Autism (CSA) is located in the Salem/Portland, Oregon area. The Center provides information about autism to parents and professionals, and conducts research on the efficacy of various therapeutic interventions. Much of our research is in collaboration with the Autism Research Institute in San Diego, California. AUTISM NATIONAL COMMITTEE This site is an autism advocacy organization founded in 1990 to protect and advance the human rights and civil rights of all persons with autism, Pervasive Developmental Disorder, and related differences of communication and behavior. INFORMATION ON AUTISM FROM KIDS HEALTH This site explains Autism in a way children can understand. Asperger's SyndromeASPERGER SYNDROME COALITION The Asperger Syndrome Coalition of the U.S. is a national nonprofit organization committed to providing the most up-to-date and comprehensive information on Asperger Syndrome and related conditions. Bipolar DisorderCHILD AND ADOLESCENT BIPOLAR FOUNDATION The Child and Adolescent Bipolar Foundation educates families, professionals, and the public about early-onset bipolar disorders; supports families to maximize the well-being of the child while minimizing the adverse impact of bipolar disorders on the family; and advocates for increased services to families and research on the nature, causes, and treatment of bipolar disorders in the young. Cerebral PalsyWHAT IS CEREBRAL PALSY "Cerebral palsy is a condition caused by damage to the brain during pregnancy, labor or shortly following birth. It is neither progressive nor communicable. It is not "curable" in the accepted sense, although training and therapy can help". CEREBRAL PALSY INFORMATION CENTRAL "Welcome to CPIC. Here at the CPIC, we strive to provide you with the most complete information dealing with Cerebral Palsy. Our information is geared toward individuals with CP, families affected by CP, and just those trying to learn more". SUSIE'S CEREBRAL PALSY HOME PAGE "My name is Susie Rodde. I'm 46 and live in Torrance, California with a hearing dog named Ivy, and an attack cat named Kameco. This page is about me and my story. At the bottom of the page you'll find links to several additional pages. Some are used as resources by those with CP or other disabilities, parents of children with CP, students, and professionals such as Doctors, therapists, and teachers. Others simply serve as a way to connect with one another". INFORMATION ON CEREBRAL PALSY FROM KIDS HEALTH This site explains Cerebral Palsy in a way children can understand. Cystic FibrosisCYSTIC FIBROSIS FOUNDATION The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Down SyndromeINFORMATION ON DOWN SYNDROME FROM KIDS HEALTH This site explains Down Syndrome in a way children can understand. The National Down Syndrome Society (NDSS) NDSS is committed to being the national leader in enhancing the quality of life, and realizing the potential of all people with Down syndrome. DyscaluliaDYSCALCULIA.ORG This web site list resources that are useful for parents and educators working with children with Dyscalulia. DyslexiaDYSLEXIA - THE GIFT Join us as we explore the positive talents that give rise to dyslexia and share our knowledge about the best ways for dyslexic people to learn. INTERNATIONAL DYSLEXIA ASSOCIATION The International Dyslexia Association (IDA) is a non-profit organization dedicated to helping individuals with dyslexia, their families and the communities that support them. Their goal is to provide the most comprehensive forum for parents, educators, and researchers to share their experiences, methods, and knowledge. INFORMATION ON DYSLEXIA FROM KIDS HEALTH This site explains Dyslexia in a way children can understand. DYSLEXIA PARENTS RESOURCE Supporting and Educating your child with dyslexia. DyspraxiaDYSPRAXIA FOUNDATION A UK charity which exists to help people to understand and cope with dyspraxia. We are a resource for parents, for teenagers and adults who have the condition, and for professionals who help all of them. EpilepsyEPILEPSY FOUNDATION "The Epilepsy Foundation will ensure that people with seizures are able to participate in all life experiences; and will prevent, control and cure epilepsy through research, education, advocacy and services". THE EPILEPSY NETWORK The Epilepsy Network's two-fold mission is to provide compassionate support, education, information and referrals for people whose lives are touched by epilepsy, and to increase community awareness of seizure recognition and first aid procedures by means of training and community outreach to educators, businesses and medical professionals. INFORMATION ON EPILEPSY FROM KIDS HEALTH This site explains Epilepsy in a way children can understand. Fetal Alcohol SyndromeNATIONAL ORGANIZATION ON FETAL ALCOHOL SYNDROME NOFAS is committed to raising public awareness of Fetal Alcohol Syndrome (FAS)—the leading known cause of mental retardation—and to developing and implementing innovative ideas in prevention, intervention, education and advocacy in communities throughout the nation. CENTER FOR DISEASE CONTROL FETAL ALCOHOL SYNDROME PAGE This Web Page is dedicated to educate individuals on Fetal Alcohol Syndrome. Fragile X SyndromeNATIONAL FRAGILE X FOUNDATION There is information on this web site that you may view, use and download to share with physicians, therapists and teachers to increase awareness of Fragile X Syndrome. FRAXA RESEARCH FOUNDATION The web site is dedicated to support research aimed at treatment for Fragile X syndrome. Hearing ImpairedALEXANDER GRAHAM BELL ASSOCIATION FOR THE DEAF AND HARD OF HEARING Information and support center for pediatric hearing loss and the auditory approach. INFORMATION ON HEARING IMPAIRMENTS FROM KIDS HEALTH This site explains Hearing Impairments in a way children can understand. Lennox-Gastaut SyndromeLENNOX-GASTAUT SYNDROME The Lennox-Gastaut (LG) syndrome is one of the epileptogenic encephalopathies of childhood an it presents as intractable or hard to control seizures. Learning DisabilitiesDIVISION FOR LEARNING DISABILITIES The Division for Learning Disabilities (DLD) of the Council for Exceptional Children is the largest international professional organization focused on learning disabilities. The purpose of their web site TeachingLD is to provide trustworthy and up-to-date resources about teaching students with learning disabilities. LDONLINE Web site on Learning Disabilities for parents, teachers and other professionals. LEARNING DISABILITIES ASSOCIATION OF AMERICA The Learning Disabilities Association of America (LDA) is a non-profit grassroots organization whose members are individuals with learning disabilities, their families, and the professionals who work with them. LDA strives to advance the education and general welfare of children and adults with learning disabilities. NATIONAL CENTER FOR LEARNING DISABILITIES The mission of the National Center for Learning Disabilities (NCLD) is to increase opportunities for all individuals with learning disabilities to achieve their potential. NCLD accomplishes its mission by increasing public awareness and understanding of learning disabilities, conducting educational programs and services that promote research-based knowledge, and providing national leadership in shaping public policy. We provide solutions that help people with LD participate fully in society. INFORMATION ON LEARNING DISABILITIES FROM KIDS HEALTH This site explains Learning Disabilities in a way children can understand. Mitochondrial DiseaseMITOCHONDRIAL DISEASE To promote research for cures and treatments of mitochondrial disorders and to provide support to affected individuals and families. Nonverbal Learning DisorderNLDline Educating the care givers and associates of individuals with NLD is the prime goal of this web site. NONVERBAL LEARNING DISORDERS ASSOCIATION The Nonverbal Learning Disorders Association (NLDA) is an international non-profit corporation committed to facilitating education, research and advocacy for children and adults who manifest disabilities associated with the syndrome of nonverbal learning disorders. Prader-willi SyndromePRADER-WILLI SYNDROME ASSOCIATION Prader-Willi Syndrome Association (USA) is dedicated to serving individuals affected by Prader-Willi Syndrome (PWS), their families, and interested professionals by providing information, education, and support services. Sensory Processing Disorderwww.sensorize.com This website is full of information, parent resources, and local Santa Cruz resources for parents and educators to use. Smith-Magenis SyndromePARENTS AND RESEARCHERS INTERESTED IN SMITH-MAGENIS SYNDROME (PRISMS) PRISMS is dedicated to providing information and support to families of persons with Smith-Magenis Syndrome (SMS) and fostering partnerships with professionals to increase awareness and understanding of SMS. Spina BifidaSPINA BIFIDA ASSOCIATION OF AMERICA The Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of all affected. The Association was founded in 1973 to address the specific needs of the spina bifida community and serves as the national representative of almost 60 chapters. INFORMATION ON SPINA BIFIDA FROM KIDS HEALTH This site explains Spina Bifida in a way children can understand. INFORMATION ON SPINA BIFIDA FROM Healthopedia.com YOUR HEALTH ENCYCLOPEDIA Tourette SyndromeINFORMATION ON TOURETTE SYNDROME FROM KIDS HEALTH This site explains Tourette Syndrome in a way children can understand. Williams SyndromeThe Williams Syndrome Association The Williams Syndrome Association is dedicated to enriching the lives of individuals with characteristics of Williams syndrome. Information on Willimas Syndrome from the National Institute of Neurological Disorders and Stroke (NINDS) NINDS is dedicated to reduce the burden of neurological disease . Special Education LinksI E P RESOURCE SITE This site contains contemporary products for students across the disability continuum, K-12. Features teacher created materials for staff development. Includes educational curricula, software, videos, Assistive technology, and hands-on training materials. 18 TIPS FOR GETTING QUALITY EDUCATIONAL SERVICES FOR YOUR CHILD This information is provided by Protection and Advocacy, Inc. (PAI) a nonprofit agency that provides legal and other advocacy assistance to people with disabilities, including physical, developmental and psychiatric disabilities. Services available from PAI include: information and referral to other sources of assistance; peer and self advocacy training; representation in administrative and judicial proceedings; investigation of abuse and neglect; and legislative advocacy. RIGHTS AND RESPONSIBILITIES MANUAL This manual was produced by Community Alliance for Special Education (CASE) and Protection and Advocacy, Inc (PAI). The manual is a valuable resource for parents with special needs children. It includes such things as Evaluation and Assessment, IEP Process, Due Process Hearings/Compliance Complaints and Least Restrictive Environment for educational placement. It is available in several spoken languages. CALTASH - THE ASSOCIATION FOR PERSONS WITH SEVERE HANDICAPS This organization provides support on advocacy for Californians with severe disabilities in education, employment, living, recreation and other community access issues through legislation, information and support of litigation. It conducts summer symposiums, newsletters, Legislative information affecting persons with disabilities. COPAA The Council of Parent Attorneys and Advocates (COPAA) is an independent, nonprofit, §501(c)(3) tax-exempt organization of attorneys, advocates and parents, whose primary mission is to secure educational services for children with disabilities. COPAA is premised on the belief that the key to effective educational programs for children with disabilities is collaboration as equals by parents and educators. IDEA PRACTICE The Individuals with Disabilities Education Act Laws and Regulations CALIFORNIA DEPARTMENT OF EDUCATION - SPECIAL EDUCATION DIVISION CALIFORNIA DEPARTMENT OF EDUCATION - Safeguards Referral Service GUIDE TO LEGISLATIVE AND PUBLIC POLICY WEB SITES A listing of issues of current importance affecting children with special needs/disabilities. Education & EmploymentPARENTS ADVOCACY COALITION FOR EDUCATIONAL RIGHTS PACER provides information on disabilities and disability-related issues, such as post-seconadry education. NATIONAL COLLABORATIVE ON WORKFORCE AND DISABILITY NCWD/Youth is your source for information about employment and youth with disabilities. COPING.ORG TOOLS FOR COPING WITH LIFE'S STRESSORS An Overview of Vocational Education for Students with Disabilities EMPLOYMENT DEVELOPMENT DEPARTMENT They offer a variety of programs and services that were especially designed for youth or may be of interest to youth. THE NATIONAL CENTER ON SECONDARY EDUCATION AND TRANSITION Was established to create opportunities for youth with disabilities to achieve successful futures. Related OrganizationsA Special Nanny Special Nanny provides qualified, dedicated, professional nannies and one-to-one aides for families of children with special needs living in the greater Bay Area. Education Specialists Network Education Specialists Network is a comprehensive network of specialists who support the educational, emotional and physical needs of students in the greater San Francisco Bay Area. This is a free referral service for parents, educators and allied professionals to empower student success. Helping Hands Therapeutic Riding Center Helping Hands Therapeutic Riding Center is dedicated to helping children and adults with disabilities utilizing equine assisted activities to improve their everyday quality of life. NATIONAL INFORMATION CENTER FOR CHILDREN AND YOUTH WITH DISABILITIES NICHCY is the national information center that provides information on disabilities and disability-related issues. FAMILY CENTER ON TECHNOLOGY AND DISABILITY Monthly newsletter about technology; also resource library, on-line discussion group, and reviews. Lindamood-Bell Learning Processes-Monterey Center Lindamood-Bell Learning Processes is an organization dedicated to helping children and adults learn to their potential. Lindamood-Bell's research-based instruction teaches reading, language comprehension, and math, and is especially successful with children previously diagnosed with dyslexia, hyperlexia, and autism disorders. Kutaways Kutaways, is pursuing its goal to make dressing a little easier for people in wheelchairs with a unique and versatile coat. Kutaways coats offer comfort, warmth and ease of use, making daliy dressing easier and providing an added measure of self-esteem to the wearer. Visit www.kutaways.com or Email Jennifer Gallienne at: jennifer@kutaways.com Return to Top |
